The Anxious Writer

I mostly reblog things that interest me; cats, feminism, asexuality, etc. I have intracranial hypertension and I love Vegeta!

IIH Symptoms and Update

I went to a new neuro-opthalmologist now that I moved to a new state. She took a look at my optic nerves, shined all the bright lights…the usual. I was already scheduled for another check-up appointment in six weeks. She wants to lower my dosage of acetazolamide and eventually take me off it completely. Apparently my severe papilledema is almost non-existent. The doctor said my optic nerves look only a bit more swollen than an average person’s.

The idea of being taken off the Diamox makes me nervous because it actually has helped a lot. And what if I have to go back on it and get all those horrendous side-effects again. Uuurg. But I’m also quite intrigued. I’ve gained a lot of weight since moving and starting a new job. And along with the weight gain…my symptoms of intracranial hypertension have decreased. I am not saying that this is due to weight gain—but it’s extremely odd that the lack of symptoms coincides with this increase of weight.

But along with the acetazolamide I’m also taking some meds for IBS and acid reflux. One of these prescriptions is a low dosage of nortriptyline, which is also used to treat migraines or chronic headaches. Perhaps that’s why my headaches are nearly non-existent, too. I think this is why it’s incredibly important for this illness to be researched—some things work for others while some things do not.


So, this happened.
I have a very rare brain disease called Idiopathic Intracranial Hypertension, and the older term is Pseudotumor Cerebri, which literally means that the cerebrospinal fluid surrounding my brain is too high, crushing it and causing pressure to the brain and eyes. This disease is painful, deadly, and disabling. Many people with IH/Pseudotumor Cerebri are legally blind. This disease also has a plethora of other painful symptoms.
One man who has IH decided to create a challenge for other IHers a couple of nights ago called the Blindfolded Brainfreeze Challenge, reason being that IH like said, is extremely rare (effects 1 in 100,000, that’s 10 people per million) and because of that, there are hardly any funds and research that goes into IH. There is no cure, only temporary treatments that’ve been proven to be ineffective for most of us.
Well, James L. Brooks, one of the creators of The Simpsons actually retweeted the #BBF challenge because his daughter has IH. This is amazing because IH needs the funds so the research can go into finding a cure for us.
This is why I’ve been excited/crying for almost 2 hours. If anyone has Twitter, I’d really appreciate if you retweeted that video from him. This means the world to me.

So, this happened.

I have a very rare brain disease called Idiopathic Intracranial Hypertension, and the older term is Pseudotumor Cerebri, which literally means that the cerebrospinal fluid surrounding my brain is too high, crushing it and causing pressure to the brain and eyes. This disease is painful, deadly, and disabling. Many people with IH/Pseudotumor Cerebri are legally blind. This disease also has a plethora of other painful symptoms.

One man who has IH decided to create a challenge for other IHers a couple of nights ago called the Blindfolded Brainfreeze Challenge, reason being that IH like said, is extremely rare (effects 1 in 100,000, that’s 10 people per million) and because of that, there are hardly any funds and research that goes into IH. There is no cure, only temporary treatments that’ve been proven to be ineffective for most of us.

Well, James L. Brooks, one of the creators of The Simpsons actually retweeted the #BBF challenge because his daughter has IH. This is amazing because IH needs the funds so the research can go into finding a cure for us.

This is why I’ve been excited/crying for almost 2 hours. If anyone has Twitter, I’d really appreciate if you retweeted that video from him. This means the world to me.

(Source: oxygeninyourblood)

The Sexual Violence of Non-consensual Nudity

jennytrout:

The Sexual Violence of Non-consensual Nudity

Nude pictures of Jennifer Lawrence and several other young female celebrities were leaked on the internet today. That one sentence will elicit several responses. Some people will rush off to Google, to sate their curiosity. Some people will gleeful denounce her as a “slut” or think something to the effect of, “Well, she shouldn’t have taken them if she didn’t want people to see.” And only a very…

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(via homunculilith)

browngirlblues:

Women against feminism are basically just arguing that their individual lives are fine and they don’t care about what other women go through

(via niteryde)

Anonymous asked: Why are you so angry about JLaw's nudes being leaked? I thought you didn't like her.

tstarksbitch:

  • i am angry because this is just another example of women being shamed for taking nudes instead of the douchebag who spreads them being shamed for violating someone’s privacy like that
  • i am angry because nobody deserves this, regardless of how i feel about their personality
  • i am angry because this is pure misogyny and shows how women aren’t respected in our culture
  • i am angry because she did not consent to having those pics posted everywhere but they still were
  • i am angry because on the VERY RARE occasion this happens to a male celeb he is not shamed but rather the perpetrator is and it’s forgotten quickly whereas this will haunt jennifer for years and years to come
  • i am angry because this was a sex crime and people are treating it like a joke
  • i am angry because she is being exploited/objectified and some gross dudebros are probably jacking off to those pics 
  • i am angry because people are CONGRATULATING the fucker who did such an atrocious thing to her instead of being appalled 

listen i may not like her personally but the fact remains that as a human being she is entitled to body autonomy and to choose who sees her naked body and who doesn’t 

"Women are the niggers of gender," the email said. "If you killed yourself, I wouldn’t even fuck the corpse."

I blinked at my phone, fighting simultaneous urges to hurl my phone across the room in anger and cry. Later that day, someone texted me my address — telling me they’d “See me when I least expected it.”

I haven’t been out to my car at night by myself since January 2nd.

My name is Brianna Wu. I lead a development studio that makes games. Sometimes, I write about issues in the games industry that relate to the equality of women. My reward is that I regularly have men threatening to rape and commit acts of violence against me.

No skin thick enough: The daily harassment of women in the game industry | Polygon (via brutereason)

That is terrible and heart breaking on so many levels

(via starcunning)

(via saiyianbang)

Anonymous asked: Could we get more grandparents vegebul??

stupidoomdoodles:

image

their sappiness level is over 9000